2nd Annual Chase for a Cure Tournament Raises Over $28K
The second annual Chase for a Cure golf tournament raised over $28,000 on Monday at Crystal Lake.
Over a two year period, the tournament has raised about $60,000 to benefit the Marfan Foundation and Chase Callahan.
“Our family simply can’t thank all of you enough for your support and generosity. Kate and I feel truly blessed to have such caring friends and family. You have all rallied around our little guy. Thank you for another successful year, because we may organize the event, but you all make it possible,” writes Michael Callahan.
Chase Callahan, born on May 3, 2018, was diagnosed with rare disease called Kyphoscoliotic Ehlers-Danlos Syndrome (KEDS) five months later.
Ehlers-Danlos Syndrome is a genetic connective tissue disorder. It affects the heart, blood vessels, joints, eyes, and spine.
“Currently Chase is doing phenomenal. He’s running around and playing with all his Christmas gifts like any other 3 year old. Chase has at least 5 different appointments a week, whether it’s physical therapy, occupational therapy, speech. His schedule is more jam packed than his parents. All the hard work that our family has put into keeping him as healthy as possible has paid dividends to this point. That approach will only work for so long though. That’s why this tournament remains imperative to generate funds for medical research,” said Michael in a statement.
About the Marfan Foundation
The Marfan Foundation’s mission is to save lives and improve the quality of life of individuals with Marfan syndrome, VEDS, Loeys Dietz, and other genetic aortic conditions.
The Foundation works tirelessly to advance research, serve as a resource to families and healthcare providers, and raise public awareness.