Annual Chase for a Cure Tournament to be held at Crystal Lake
The second annual Chase for a Cure Golf Tournament will be held at Crystal Lake this year, after being held at Valley in 2021.
The tournament is held by RI’s Michael Callahan and his wife Kate to benefit their son Chase.
Chase Callahan, born on May 3, 2018, was diagnosed with rare disease called Kyphoscoliotic Ehlers-Danlos Syndrome (KEDS) five months later.
Ehlers-Danlos Syndrome is a genetic connective tissue disorder. It affects the heart, blood vessels, joints, eyes, and spine.
“Currently Chase is doing phenomenal. He’s running around and playing with all his Christmas gifts like any other 3 year old. Chase has at least 5 different appointments a week, whether it’s physical therapy, occupational therapy, speech. His schedule is more jam packed than his parents. All the hard work that our family has put into keeping him as healthy as possible has paid dividends to this point. That approach will only work for so long though. That’s why this tournament remains imperative to generate funds for medical research,” said Michael Callahan in a statement.
The tournament will be held on Monday, May 16 at Crystal Lake.
All proceeds benefit The Marfan Foundation.
About the Marfan Foundation
The Marfan Foundation’s mission is to save lives and improve the quality of life of individuals with Marfan syndrome, VEDS, Loeys Dietz, and other genetic aortic conditions.
The Foundation works tirelessly to advance research, serve as a resource to families and healthcare providers, and raise public awareness.