RI Family Hopes to Raise Funds for 18-Month-Old Son with Rare Disease Through Golf Tourney
Third time is the charm? One Rhode Island family is hoping so.
After having to cancel twice already due to Covid, the Callahan family, Michael and his wife, are hosting a golf tournament at Valley Country Club in May to benefit their son Chase.
Chase Callahan, born on May 3, 2018, was diagnosed with rare disease called Kyphoscoliotic Ehlers-Danlos Syndrome (KEDS) five months later.
Ehlers-Danlos Syndrome is a genetic connective tissue disorder. It affects the heart, blood vessels, joints, eyes, and spine.
“Chase is now eighteen months old and is a little ball of energy. Chase has learned to “scoot” all around the house and has even started to stand with some support. Chase’s determination, curiosity, and relentless energy have proven to be his biggest assets,” writes the Callahan family in the tournament brochure.
The golf tournament will now take place on Tuesday, May 17 at Valley with a shotgun start at 11 a.m.
Funds raised from the tournament will benefit Chase, as well as, the Marfan Foundation.
About the Marfan Foundation
The Marfan Foundation’s mission is to save lives and improve the quality of life of individuals with Marfan syndrome, VEDS, Loeys Dietz, and other genetic aortic conditions.
The Foundation works tirelessly to advance research, serve as a resource to families and healthcare providers, and raise public awareness.